Interstitial and Orphan Lung Diseases are represented by The Australian Lung Foundation's PIVOT Consultative Group.

Initiatives for this program are under development and include the following:

• Interstitial Lung Disease 
• Pulmonary Fibrosis
• Pulmonary Arterial Hypertension
• LAM
• Sarcoidosis
• Scleroderma
• Wegener's Granulomatosis

Interstitial and Orphan Lung Disease Day - 24th November 2008

The Australian Lung Foundation has designated November, 'Lung Health Awareness Month' and for the first time, is recognising interstitial and orphan lung diseases with a specific day of its own.

On Monday 24th November, we will be issuing a Press Release promoting the register of interstitial and rare lung diseases being developed by The Australian Lung Foundation's PIVOT group.

The Registry has been christened ARNOLD (Australasian Registry Network for Interstitial and Orphan Lung Disease) and aims to capture the incidence and prevalence of these conditions - there is currently no data of this nature in Australasia.

Full Press Release available here:  Press_Release 115.39 Kb.

Thank you for your interest. For further information, please contact The Australian Lung Foundation's LungNet Information and Support Centre toll free on 1800 654 301.